Saving Henry by Laurie Strongin

Saving Henry is the eye-opening and inspiring story of how far a family will go to save the life of their child. Laurie Strongins son Henry was born with a heart condition that was operable, but which proved to be a precursor for a rare, almost-always fatal illness: Fanconi anemia. Deciding to pursue every avenue that might provide a cure, Laurie and her husband signed on for a brand new procedure that combined in vitro fertilization with genetic testing to produce a baby without the disease, who could be a stem cell donor for Henry. As Laurie puts it: I believe in love and science, nothing more and nothing less. More than anything, Saving Henry is a love story. It chronicles a mothers love for her child, and a communitys love for a family. Henrys life provides the inspiration for a national non-profit organization that is leading the way on patient engagement and reinventing the pediatric patient experience.