Hope by Malaysia Lysosomal Diseases Association

Hope is a collection of real stories about individuals who are surviving and fighting LSD. We hope this publication will help create greater awareness to the public regarding this life threatening condition. In Hope you will meet parents parents, kids, brothers, sisters, students, and other individuals from different walk of life-all of whom have these things in common. Their struggle to cope with the disease, their believes, HOPEs and aspirations to live life to the fullest. Every life is precious and irreplaceable and above all it is every parent hope to have a perfect and healthy child. However, this may not be the case sometimes. Our families are the RARE one. Only 7 out of 50 types of LSD have ERT treatment but the medical cost is very costly. No families could handle the bill and government funding is our only HOPE.